Full Name
Tresa Warner
Company
National Urea Cycle Disorder Foundation
Speaker Bio
Tresa Warner, MBA, is a dedicated nonprofit and patient advocacy leader with extensive experience in organizational leadership, strategic planning, and community engagement. As Executive Director of the National Urea Cycle Disorders Foundation (NUCDF), she leverages decades of advocacy, research collaboration, and personal experience as a UCD parent to advance understanding, treatment, and quality of life for affected families. With a proven record of uniting patients, clinicians, and researchers, Tresa has held leadership roles in NIH- and PCORI-funded studies and global symposiums on urea cycle disorders. Her leadership fosters innovation, trust, and rapid research progress across the rare disease community.
Speaking At
